US – RRT Helps at the GBS | CIDP Event in Chicago
On May 30, 2015, The GBS/CIDP International Foundation enlisted the Rapid Relief Team from Chicago, Illinois for assistance with their Walk and Roll Event. This event was held at Busse Woods, in Elk Grove Village, IL.
It was a dark and stormy day that Saturday with temperatures dipping into the 50 degrees Fahrenheit and the thundershowers were prevalent. Despite the unfortunate weather, the GBS | CIDP (Guillain-Barre Syndrome -Chronic Inflammatory Demyelinating Polyneuropathy) Walk and Roll carried on until every participant completed what they had set themselves to do! Many of these participants had faced extraordinary debilitating challenges in their lives and were either wearing braces to support themselves or were being pushed in wheelchairs by their supportive family members and friends.
Guillain-Barre Syndrome is an inflammatory disorder of the peripheral nerves outside the brain and spinal cord. It is characterized by a rapid onset of paralysis of the legs, arms, face and breathing muscles and frequently accompanied by weakness, tingling or a numbing sensation. GBS came to the public attention when it struck a number of people who received the 1976 swine flu vaccine. Today it continues to claim thousands of new victims every year, striking people of any age, gender or ethnic background.
At this fundraising event, the RRT volunteers showed their support to the victims by setting up tents to provide some shelter from the steady downpour, and passing out refreshments and cold water to all. The Volunteers also assisted along the course by providing marshalling and offering their encouragement and support along the way.
In 2016, this same event will take place from 9:00 a.m. – 12:00 p.m. on September 18 at Busse Woods, Elk Grove Village, IL again. The fundraising is in view of early detection, diagnosing accurately, and providing a proper treatment that is affordable as well as the support services that are depended upon.
The RRT volunteers found it to be a very enlightening experience to be able to support those suffering from GBS and see how the victims of this rare condition have overcome so many obstacles in life. To learn more about this disease and further support these individuals, see their website at: http://www.gbs-cidp.org/.